Last updated: Monday, July 26, 2010
Measurement Resources on the Internet
Prepared by the Measurement and Methods Cores
and the UCLA2
This list includes sources of measures for a variety
of purposes and population subgroups. We welcome information about
additional web links to measures; please contact Chris Becker.
Inclusion of these web sites on this list does
not constitute endorsement by the RCMAR Centers. Please review
measures for their appropriateness for your research project and
Its primary mission is to increase the contribution that health
services research makes to improving the health care system and
health status of Americans. Academy Health - Health Outcomes Core Library
The Health Outcomes Core Library Module Project consists
of compilations of selected books, journals, Web sites, and bibliographic
databases related to health outcomes. Produced by AcademyHealth
at the request of the National Library of Medicine’s National
Information Center on Health Services Research and Health Care Technology
(NICHSR), the project focused on developing the core and desired
sets of resources for health libraries.
American Cancer Society
The American Cancer Society is the nationwide community-based voluntary
health organization dedicated to eliminating cancer as a major health
problem by preventing cancer, saving lives, and diminishing suffering
from cancer, through research, education, advocacy, and service.
American Journal of Managed Care
An independent, peer-reviewed, medical-scientific journal dedicated
to health care outcomes research.
American Medical Informatics Association
AMIA is dedicated to the development and application of medical
informatics in the support of patient care, teaching, research,
and health care administration.
American Public Health Association, Health Disparities Database
Combines projects and interventions submitted by members since 2003.
American Society of Clinical Oncology
As a non-profit organization, ASCO is dedicated to achieving its
charitable mission outlined by the organization's founders in 1964.
ASCO strongly supports all types of cancer research, but in particular,
patient-oriented clinical research.
American Thoracic Society
The American Thoracic Society is an independently incorporated,
international, educational and scientific society which focuses
on respiratory and critical care medicine. The Society's members
help prevent and fight respiratory disease around the globe through
research, education, patient care, and advocacy. The Society's long-range
goal is to decrease morbidity and mortality from respiratory disorders
and life-threatening acute illnesses.
Behavioral Risk Factor Surveillance System
The BRFSS questionnaire has three parts: 1) the core component,
consisting of the fixed core, rotating core, and emerging core,
2) optional modules, and 3) state-added questions.
Consumer Assessment of Health Plans Survey
(CAHPS®) and Reporting Kit
The CAHPS® Survey and Reporting Kit 2002 (the Kit) contains
everything that sponsors and vendors need to field a questionnaire,
analyze the results, and produce a consumer-friendly report.
CDC Healthy Days
Provides information on how the CDC measures population health-related
quality of life, how the summary index of unhealthy days is calculated,
the Health-Related Quality-of-Life Measure and related information.
Center for International Rehabilitation
Research Information and Exchange
CIRRIE's mission is to facilitate the sharing of information and
expertise in rehabilitation research between the U.S. and other
Child Health Questionnaire
The Child Health Questionnaires is a generic quality of life instrument
that has been designed for use with children 5 years of age and
The Clinical Decision Making Group at the MIT Laboratory for Computer Science
The Clinical Decision Making Group at the MIT Laboratory for Computer
Science is a research group dedicated to exploring and furthering
the application of technology and artificial intelligence to clinical
situations. Cochrane Collaboration - Health Related
QoL Methods Group
The overall aim of the group is preparing, maintaining and promoting
the accessibility of systematic reviews of the effects of health
care interventions. The link gives contact information for the patient-related outcomes methods working group.
Decision Analysis Society of INFORMS
The Society promotes the development and use of logical methods
for the improvement of decision-making in public and private enterprise.
This self-administered depression screener was developed for RAND's
Partners in Care study. The screener included the items for assessing
major depressive and dysthymic disorders from the 12-month Composite
International Diagnostic Interview (CIDI) and items assessing depression
symptoms in the past month.
The Michigan Diabetes Research and Training Center (MDRTC) supports
research, health professional training, patient education, and community
outreach in diabetes and related endocrine and metabolic disorders.
MDRTC has developed several survey instruments for diabetes patients
and health professionals.
Drug Information Association
Trade organization sponsors and annual meeting on quality of life
Epilepsy Surgery Inventory-55 (ESI-55)
Evaluación Clinica Y Económica de Intervenciones Sanitarias
Spanish language site with pages on quality of life that include
a list of instruments, databases, and bibliograpy.
Expert Review of Pharmacoeconomics & Outcomes
Published bimonthly by Future Drugs, this ground-breaking journal
provides commentary and analysis on the growing relationship between
economic factors and clinical prescribing decisions, providing a
practical background to informed prescribing decisions and allocation
of healthcare resources.
FACIT Functional Assessment of Chronic Illness
Functional Assessment of Chronic Illness Therapy Measurement System.
U.S. Food and Drug Administration
Regulatory agency of the U.S. Many slide sets related to quality
Harry Guess Research Community
This site (named in honor of the late Harry Guess MD PhD) is a virtual research community for pharmacopepidemiology, patient-reported outcomes, and pediatric therapeutics. It was set up with the hope that the site will become a repository of valid and freely available research tools and resources.
Health and Psychosocial Instruments
The Health and Psychosocial Instruments (HAPI) database provides
easy access to information on over 120,000 instruments including
questionnaires, interview schedules, checklists, index measures,
coding schemes/manuals, rating scales, projective techniques, vignettes,
scenarios, and tests. The instruments were culled from health fields,
psychosocial sciences, organizational behavior, and library and
information sciences. Dr. Evelyn Perloff at the University of Pittsburgh
School of Nursing created HaPI.
Health and Quality of Life Outcomes
Journal with measurement articles.
Health-related quality of life measures
HIV cost and services utilization study.
Healthy People 2010
Healthy People 2010 is the prevention agenda for the U.S. Healthy
People 2010 challenges individuals, communities, and professionals
to take specific steps to ensure that good health, as well as long
life, are enjoyed by all. Health Technology Assessment International
ISTAHC seeks to foster the application of high-quality and appropriate
Health Technology Assessment in health care decision-making, by
means of and interdisciplinary and international approach, encouraging
the timely and effective dissemination of assessment information
throughout the world, and supporting education and research in Health
HIV-PARSE Baseline Questionnaire
The HIV Patient Assessed Report of Status and Experience (HIV-PARSE)
(Download PDF) is a self-administered patient survey instrument
developed by RAND and the University of California at San Diego.
It is designed to assess patient outcomes in clinical trials of
therapies for treating HIV-infected patients. The survey instrument
contains sections measuring symptoms, disability, utilization, and
health status and functioning. The responses are assessed using
a version of the Medical Outcomes Study 36-Item Short Form Health
Survey (SF-36) measure that has been modified for HIV patients.
Improving Chronic Illness Care Evaluation
Data collection instruments designed to provide practical guidance
to health care organizations seeking to improve care for patients
with chronic disease.
International Clinical Epidemiology Network
INCLEN is dedicated to improving the health of the people by promoting
clinical practice based on the best evidence of effectiveness and
the efficient use of resources.
International Health Economics Association
IHEA was formed to increase communication among health economists,
foster a higher standard of debate in the application of economics
to health and health care systems, and assist young researchers
at the start of their careers.
International Medical Informatics Association
Aims to promote informatics in health care and biomedical research,
advance international cooperation, stimulate research, development
and routine application, further the dissemination and exchange
of information, and encourage education and responsible behaviour.
International Psycho-Oncology Society
The mission of this society is to promote the psychological,
social, and physical well being of psycho-oncology patients at all stages of disease and
survivorship through clinical care, education, research, and advocacy.
International Society for Pharmacoeconomics
and Outcomes Research (ISPOR)
ISPOR is an international non-profit organization formed in 1995
to promote the practice and science of pharmacoeconomics and health
International Society for Pharmacoepidemiology
The International Society for Pharmacoepidemiology (ISPE) is a non-profit
international professional membership organization dedicated to
promoting pharmacoepidemiology, the science which applies epidemiologic
approaches to studying the use, effectiveness, value and safety
of pharmaceuticals. ISPE is firmly committed to providing an unbiased
scientific forum to the views of all parties with interests in drug
development, drug delivery, drug use, drug costs, and drug effects.
International Society for Quality of Life
The goals of the society are to stimulate interdisciplinary research
in quality-of-life (QOL) studies within the managerial (policy),
behavioral, social, medical, and environmental sciences; To provide
an organization which all academic, business, nonprofit, and government
researchers who are interested in QOL studies can coordinate their
efforts to advance the knowledge base and to create positive social
change, and; To encourage closer cooperation among scholars engaged
in QOL research to develop better theory, methods, measures, and
Kidney Disease Quality of Life
Managed Health Care Survey
This survey is designed to capture key differences between managed
and "un- managed" care as well as differences among managed
care arrangements. It includes six domains
predicted to have an impact on access, service utilization, costs
and quality. The domains are: characteristics of the managed care
plan, enrolled population, benefit design, payment and risk arrangements,
composition of provider networks, and accountability. Data are collected
at three levels: managed care organization, subcontractor, and network
of service providers.
MAPI Research Institute
MAPI Research Institute is a non-profit international health outcomes
organisation established to support and promote research in the
field of Health-Related Quality of Life (HRQoL). The Institute has
particular expertise in cultural adaptation and linguistic validation
of questionnaires, helpful instrument pages, a widely distributed
newsletter and useful links.
MacArthur Research Network on Socioeconomic
Status and Health
Measures of socioeconomic status
Medical Outcomes Study (MOS) measures of
The Medical Outcomes Study was a two-year study of patients with
chronic conditions. As part of the study, the research team assessed
how well patients adhered to treatment regimes. The measures of
patient adherence (PDF) include two types of measures. A general
measure assessed patients' adherence to treatment for heart disease,
diabetes, and hypertension; a specific measure assessed patients'
adherence to treatment recommendations for the tracer conditions
studied in the MOS and also gathered information about how often
the patient carried out the recommendations.
Medical Outcomes Study (MOS) measures of
quality of life
The Medical Outcomes Study was a two-year study of patients with
chronic conditions. The 116-item core MOS measures of quality of
life include physical, mental, and general health. Both the core
survey instrument (PDF) and instructions for scoring it (PDF) are
available. The instructions include references to many articles
that describe the process by which the measures were developed and
discuss their validity and reliability. The User's Manual for Medical
Outcomes Study (MOS) Core Measures of Health-Related Quality of
Life summarizes the MOS measures and presents psychometric results
from the MOS. It is designed to be a companion to the book, Measuring
Function and Well-Being: The Medical Outcomes Study Approach (see
Stewart, Sherbourne, Hays, et al., 1992 in the references listed
Medical Outcomes Study (MOS) sexual problems
The MOS sexual problems measures are part of the core MOS measures
of quality of life.
Medical Outcomes Study (MOS) Social Support
This brief, self-administered social support survey was developed
for patients in the Medical Outcomes Study, a two-year study of
patients with chronic conditions. It is easy to administer to chronically
ill patients, and the items are short, simple, and easy to understand.
It may also be appropriate for use with other populations.
Medical Outcomes Study 20-Item Short-Form
The 20-Item Short-Form Health Survey (SF-20) (PDF) was developed
for the Medical Outcomes Study, a multi-year study of patients with
chronic conditions. The resulting short-form survey instrument provides
a solution to the problem faced by many investigators who must restrict
survey length. The instrument was designed to reduce respondent
burden while achieving minimum standards of precision for purposes
of group comparisons involving multiple health dimensions.
Medical Outcomes Trust
The Medical Outcomes Trust is a not for profit organization dedicated
to improving health and health care by promoting the science of
outcomes measurement, and the development, evaluation and distribution
of standardized, high quality instruments that measure health and
the outcomes of medical care.
Mental Health Inventory from the Medical
The 37 measures in the mental health inventory are part of the 116
core measures of function and wellbeing from the Medical Outcomes
Study, a two-year study of patients with chronic conditions.
Multidimensional Health Locus of Control
Multinational Association Of Supportive
Care in Cancer
The Multinational Association of Supportive Care in Cancer (MASCC)
is a fully private, non-profit-oriented professional and research-oriented
association of physicians, nurses and other health-care professionals,
aimed at providing the most recent scientific and social information
on all aspects of cancer care world wide. This includes physical
and psychosocial symptoms and side effects across the entire continuum
of the cancer experience including the enhancement of rehabilitation
MUSC Measurement Tools
The Southern Carolina Cooperative for Healthy Aging in Minority
Populations website with descriptions of Measurement Tools aimed
at researchers in minority and aging studies.
Nurse Peer Review
RAND Health has developed a way to use structured implicit review
of the medical record to measure the quality of nursing care practically
and reliably. Peer review relies on quality judgments by expert
professionals to evaluate quality of care based on review of the
medical record. A structured implicit review is more reliable because
the key aspects of care and data sources to be reviewed are specified
Nursing Homes Outcomes Initative
Providers of long-term care use outcomes information for quality
improvement, to obtain accreditation, and to provide evidence that
they are providing effective care. This document provides a template
that nursing home providers could use in developing an outcomes
report. In the document, we define outcomes, discuss how they are
currently being used in long-term care, and describe the outcomes
measures of interest in the long-term care setting. We then provide
sample tables and figures that show how to compare outcomes for
a specific provider (in this example, the fictitious facility Nursing
Center Inc.) to other facilities in the state or the country.
On-Line Guide to Quality of
Life Assessment (OLGA)
Tools for assessing psychosocial effectiveness in clinical and pharmacoeconomic
Patient Satisfaction Questionnaire (PSQ
The Patient Satisfaction Questionnaire (PSQ), consisting of 80 items,
was originally developed by Ware and his colleagues (Ware, Snyder,
and Wright, 1976). The PSQ-III is a 50-item version that taps global
satisfaction with medical care as well as satisfaction with six
aspects of care: technical quality, interpersonal manner, communication,
financial aspects of care, time spent with doctor, and accessibility
of care. The questionnaire takes 9-12 minutes to complete.
Patient Satisfaction Questionnaire (PSQ-18)
The PSQ-18 is a short form version that retains many characteristics
of its full-length counterpart, the PSQ-III. The PSQ sub-scales
show acceptable internal consistency reliability. Furthermore, corresponding
PSQ-18 and PSQ-III subscales are substantially correlate with one
another. The PSQ-18 may be appropriate for use in situations where
the need for brevity precludes administration of the full-length
PSQ-III. The PSQ-18 takes approximately 3-4 minutes to complete.
Patient Satisfaction Survey
This patient satisfaction questionnaire was used to assess satisfaction
with care and health-related quality of life of patients of the
Unified Medical Group Association.
Pediatric Asthma Symptom Scale in English
Pediatric asthma survey measures have not been adequately tested
in non-English-speaking populations. The authors evaluated the reliability,
validity, and language equivalency of an English and Spanish symptom
scale to measure asthma control in children. Parents of 234 children
seen in emergency rooms for asthma were asked to report on the frequency
and severity of their children's asthma symptoms at the beginning
and after the resolution of the exacerbation. An eight-item scale
composed of reports of cough, wheezing, shortness of breath, asthma
attacks, chest pain, night symptoms, and overall perceived severity
had very good psychometric properties in both English and Spanish.
The reliability of the scale ranged from 0.81 to 0.87 for both languages,
exceeding the standards for group comparisons. Its ability to adequately
measure individual change has not been established. There were no
statistically significant differences in the reliability or construct
validity of the summary symptom scale by language. The results of
this evaluation indicate that the eight-item scale is a reliable
and valid tool that can be used to measure control of asthma symptoms
in Spanish-speaking populations of low literacy.
The PedsQL 4.0 Measurement Model is a modular approach to measuring
health-related quality of life (HRQOL) in healthy children and adolescents
and those with acute and chronic health conditions.
Pesticide Use During the Gulf War
documents the survey instrument used to access the extent of pesticide
use during the Gulf War. RAND's analysis of the data collected through
the survey is reported in Pesticide
Use During the Gulf War: A Survey of Gulf War Veterans.
Physician Peer Review to Measure and Improve
Quality of Inpatient and Outpatient Clinical Care
Using Physician Peer Review to Measure and Improve Quality of Inpatient
and Outpatient Clinical Care RAND Health has developed tools to
enable healthcare organizations to measure the quality of inpatient
or outpatient clinical care practically and reliably. Peer
review relies on quality judgments by expert professionals to evaluate
quality of care based on review of the medical record. A structured
implicit review is more reliable because the key aspects of care
and data sources to be reviewed are specified in advance.
QOLID is a new database that combines information from Marcello
Tamburini's existing QLMed and the Resources Center of Mapi Research
Institute. QOLID lists 1,000 patient reported outcome questionnaires,
with detailed information on >300. The site has two sections: The
first is unrestricted and includes the objective of development,
name of the author, pathology, type of instrument, mode of administration,
population, original language and the list of available translations.
The second section requires a subscription and includes references,
copyright, detailed contact information as well as copies of over
170 original questionnaires, 100 translations and over 50 user manuals.
QualityMetric Incorporated develops and markets patient-provided
information assessment systems, including the SF-36 health survey.
Quality of Life Research
Journal with measurement articles.
Quality of life in epilepsy inventory-89
QOLIE-89 contains 17 multi-item measures of overall quality of life,
emotional well-being, role limitations due to emotional problems,
social support, social isolation, energy/fatigue, worry about seizure,
medication effects, health discouragement, work/driving/social function,
attention/concentration, language, memory, physical function, pain,
role limitations due to physical problems, and health perceptions.
Quality of life in epilepsy inventory
This is a short form version of the Quality of Life in Epilepsy
A non profit institution that aims to improve health policy and
decision making through research and analysis. Survey section includes
instruments and scoring for several important instruments. RAND Health Surveys and Tools
RAND 36-Item Health Survey 1.0
As part of the Medical Outcomes Study--a multi-year, multi-site
study to explain variations in patient outcomes--RAND developed
the 36-Item Short Form Health Survey (SF-36). SF-36 is a set of
generic, coherent, and easily administered quality-of-life measures.
These measures rely upon patient self-reporting and are now widely
utilized by managed care organizations and by Medicare for routine
monitoring and assessment of care outcomes in adult patients.
RAND-36 - Arabic Version
Arabic version of the RAND 36-Item Health Survey 1.0
The Research Methods Knowledge Base
Authored by William Trochim, a comprehensive web-based textbook
that addresses all of the topics in a typical introductory undergraduate
or graduate course in social research methods. Includes definitions
of concepts related to measurement.
Rod O'Connor & Associates
A Sydney based consulting company specialising in developing measures
and methods to aid health care decision making and improve health
service quality. Posting on the site include an 80 page review of
issues in measuring health-related quality of life.
SF-36 Web Site
"A community for measuring health outcomes using SF tools"
Seattle Quality of Life Group
"The Seattle Quality of Life Group works to improve the health
and quality of life of children, youth, and adults"
The Sleep Scale was developed for the Medical Outcomes Study (MOS),
a two-year study of patients with chronic conditions.
Social and Physical Environment Notebook
Review of issues on measuring Social and Physical Environment
Society of General Internal Medicine
An international organization of physicians and others who combine
teaching, research, and patient care in general internal medicine,
in academic and related settings such as university hospitals, government
agencies, and community health facilities.
Society for Medical Decision Making
The Society for Medical Decision Making is dedicated to promoting
rational and systematic approaches to decision making that will
improve the health and clinical care of individuals and assist health
The MacArthur Network on SES and Health has developed a sociodemographic
questionnaire which is currently being used in a number of network
sponsored projects. The instrument begins with subjective social
status questions developed by the network, the remaining questions
assess educational attainment, occupational status, income and assets.
United Biosource Corporation
The UC San Diego Health Outcomes Assessment Program
A multidisciplinary program
with the goal of improving health outcomes assessment and quality
of life. Instruments include the Quality of Well-being Scale (QWB).
University of Michigan Decision Consortium
UM's Decision Consortium is a University-wide distributed center
for decision scholarship.
The VFQ-25 is a reliable and valid 25-item version of the 51-item
National Eye Institute Visual Function Questionnaire (NEI-VFQ).
It is especially useful in settings such as clinical trials, where
interview length is a critical consideration.
VSQ-9 (Visit-Specific Satisfaction
The VSQ-9 is a visit-specific satisfaction instrument adapted by
the American Medical Group Association from the Visit Rating Questionnaire
used in the Medical Outcomes Study, a two-year study of patients
with chronic conditions.
Vulnerable Elders Survey (VES-13)
The Vulnerable Elders Survey (VES-13) is a simple function-based
tool for screening community-dwelling populations to identify older
persons at risk for health deterioration. The VES considers age,
self-rated health, limitations in physical function, and functional
Web-Based Interactive Decision Support
The Cardiac Arrhythmia and Risk of Death Patient Outcomes Research
Team (CARD PORT) modeling group homepage allows the user to perform
interactive analyses on the underlying g model.
World Database of Happiness
The World Database of Happiness is an ongoing register of scientific
research on subjective appreciation of life.
1Center for Aging
in Diverse Communities (CADC), University of California San Francisco
2Center for Health
Improvement for Minority Elders (CHIME), University of California